Virsaiya Borun, who was born in Russia, has thoraco-abdominal syndrome, also known as Pentalogy of Cantrell, which affects one in one million people
Her heart is only protected by a thin layer of skin, and she is missing a portion of her chest muscles, a diaphragm, and abdominal muscles.
Monday, September 18th, YouTube video titled VirsaiyaWarrior shows Virsaiya’s heart bursting from her chest as she giggles.
Her story first came to light in 2015, when Virsaiya’s mother Dari Borun launched a crowdfunding campaign to raise funds for her medical expenses.